Saturday, November 22, 2014

Before, +1 and +2 Years Post Diagnosis

It is taking longer than I would like but my hair is finally getting longer!  I am so grateful to still be here with my kids and family...

Taken 3 weeks prior to diagnosis. 

Taken 1 year post diagnosis. Six months post transplant. Hair is making a comeback!

Taken 2 years post diagnosis. More hair, less weight. Nineteen months post transplant. Feeling more like me!



Monday, November 10, 2014

Two Years Ago...

...I was admitted to the hospital and a diagnosis of Acute Myeloid Leukemia was confirmed. Fifty-five pounds lighter, 19 months post transplant, divorced and feeling more like myself mentally, I am doing well. I am so grateful. For many things. To God for healing my body and mind and for the absolute stubbornness I in part attribute some of my success to. To my family and friends for being my rock as I have traveled this path. I cannot imagine what this road has been like for my children, who can only now sift through their feelings now that I am no longer sick. You were the reason I fought so hard. For the fantastic team of doctors, nurses, nursing assistants and specialists at both MD Anderson and Mayo. For the insurance my former employer had that, via COBRA, allowed me to be treated. To my pets for still loving me even when for so long I couldn't give you any "momma time."  When given the opportunity, you still curl up with me. 


For those of you just beginning this journey, FIGHT!  With all that you have and are. SHARE how you are feeling on the inside as well as physically.  No, most of your family and friends won't know how you feel but they love you and want to help...even if only to empathize. Be as PATIENT as you can - with your body as it copes with treatment and tries to heal, and with those around you who only want to help but feel powerless. ADVOCATE for yourself or have a trusted family member or friend do so on your behalf. If something doesn't look or feel right, tell someone. Tell everyone until you are satisfied. Be NICE to your medical team. Aside from your family/friends, they can advocate for you and will bend over backwards to make you feel more comfortable during the process...they likely have seen it all.  TRUST and have faith in God. Pray and listen to Him. Follow medical advice. Keep fighting. You CAN do this. LIVE!

Saturday, November 8, 2014

Who Knew?

As I met T for lunch the other day, I ran into a woman I met that I worked with at Apollo - Christine Vu - who shared she followed my progress on my blog. Of course that made me feel good because over time the number of people you interact with with any frequency - that you know care about you - decreases. We all have our own lives. It happens and there is nothing wrong with it. 

I just wanted to acknowledge and thank those of you that care and still follow me, though we might not be in touch often, on this journey. Thank you!

"Why Her?"

Less than two tears ago I ran into a former Apollo colleague when I was still undergoing treatment at Mayo (it could have been MD Anderson as my memories from that time are fuzzy); his wife was undergoing treatment for cancer too. I had the privilege to meet the bright light who was his wife, Jennifer. You would have had to meet her in person, to be in the same room with her, to understand what I mean. Today, I along with tens of her family and friends got to say goodbye. She lost her battle with her disease on November 1st. 

In communicating with fellow leukemia patients/survivors, the question "have you ever asked yourself 'why me?'" comes up frequently. I honestly do not ever recall asking myself this question. Perhaps those that walked some of the journey with me - Jamie, Max, Kav, Dad, Mom, Chris, Diane, Darlene, Angelica, T, Nikol, Laura, Kathleen, Art, Tonya, Maja, Jennifer, Troy, Irene, Julius - would recall otherwise. I just knew I had to fight to stay with my kids. Period. And I am so grateful I get to. But why Jennifer?  She had young children, too. She so loved Christ and lived a Christian life. And she had such a terrible and painful road. Twice!  I struggle to wrap my head around it. Is it OK to think it unfair that Jennifer's kids have to live the rest of their lives without their mother while clinging with white knuckled fists onto the fact that my kids get to?

Why her?

Survivors Reunion

Attended my first Survivors Reunion tonite. Took my brother with me as he is the one person who has been there for me over the last two years without fail. I am grateful on many levels.