Wednesday, May 21, 2014

Nice to Meet You?

Today I have the opportunity to meet a girl who was diagnosed with a different form of Leukemia, CML. Her mother works with one of my Aunts and that is how her mother and I connected. I wish it were under different circumstances, but I look forward to meeting them both. My desire since I was diagnosed has been to be a resource to other newly diagnosed cancer patients. This is my first opportunity and I pray this helps the girl as that is my goal. To be a sounding board, a resource who has already been through some of the paces at MDA. 

Thursday, May 15, 2014

Sniff, Sniff, Gotta Wait One More Year

I was so looking forward to the opportunity to maybe share contact info with my donor but learned, because she was an international donor, I have to wait one more year. Bummer!!

Can I Help You?

Eighteen months ago, when I got sick, I knew I wanted to "mentor" newly diagnosed cancer patients. I knew I had to wait for a year post transplant. Now, 13 months post transplant I may get that opportunity with the family of a lady my Aunt works with. We have already been in contact and I have gotten to help them  figure out how to switch doctors and answer a few of their questions. I am "excited" to say I get to meet them next Wed when they are scheduled to meet with their new doctor. Wish me luck!  

Monday, May 5, 2014

One More Relay for the Books

We didn't get to stay very late, but I got my kids to walk more than 2 miles before packing it in after 3 hours. My son was asleep 4 minutes after getting back into the car. This event was really well run. Looking forward to next year's event. Coming up:  Fall Be The Match walk/run.